Be Grateful For Every Breath You Take: A Story About ALS (Amyotrophic Lateral Sclerosis)

As some of you may already know, just a few weeks ago  (August 29th, 2015) marked the 10 year anniversary of the disastrous Hurricane Katrina that caused massive damage to the coastal city of New Orleans, Louisiana here in the United States. Hundreds of people, including celebrities, came together to share stories and anecdotes of their life experiences both before and after the powerful storm transformed the city forever. One of the stories that really drew my attention was that of ex pro-football player Michael “Steve” Gleason.

Gleason was a professional football player for the New Orleans Saints who at the age of 34 was diagnosed with a super rare disease referred to as ALS, more commonly known as Lou Gehrig’s disease. In a nutshell ALS is a degenerative illness which slowly causes you to lose voluntary movement. From the ability to walk and talk and speak all the way thru to your ability to eat and breathe. He came to the peak of his career n 2006, just a bit over a year after Hurricane Katrina hit New Orleans, and gave the devastated and demoralized city hope by blocking a punt from the opposing team. This in turn lead to the first score in the Saints first game in New Orleans in nearly 21 months due to hurricane Katrina having devastated both the city and the morale of the team. Unfortunately his heightened career ended when he was diagnosed with ALS in 2011; right around the same time him and his wife were trying have a child. Despite his everyday battle with ALS and being confined to a wheelchair, Gleason’s spirits are high and his optimism and passion for life have all but been lost in the midst of his struggle with a widely misunderstood disease.

Imagine wrapping your arms around your significant other and feeling the warmth of there skin tightly pressed against yours, imagine walking down the beach and feeling the cool wet sand beneath your feet, imagine driving down the highway with the windows down and the warm summer wind caressing your face, imagine eating your favorite slice of chocolate cake and savoring it within every corner of your mouth. Now imagine what it would be like if no matter how hard you tried you couldn’t wrap your arms around the one you love, imagine not being able to walk down the beach because your legs won’t move, imagine not being able to place your hands on a steering wheel because your arms refuse to respond, imagine not being able to enjoy your favorite chocolate cake because you cannot chew. Imagine that one day, everything you normally do, everything you take for granted, all become things that you will never be able to do again.

If you haven’t been grateful for anything in a long time I implore you to walk outside and while you take a breath of air and feel the warmth of the early morning sun on your face you can at least be grateful for the fact that you were able to step out that door on your own two legs and live to see another day. As Carlos Mencia once said, “What makes life beautiful is the essence of the fact that it can go away”.

Written by: Del Rivers

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